Ok, I know off and on I complain about not feeling well. Mind you, I’ve had intestinal issues pretty much all my life.
TMI to follow:
In 2002, I started harping on doctors about it and all they diagnosed was IBS. I’ve been on various IBS meds since then and all that really does is ensure I can go to the bathrooom. I get bloated, have bad (stinky) gas, have terrible diarhea or terrible constipation. I’m not talking about occasionally, I’m talking every week I have stomach issues that last days at a time.
In 2005, I started having wierd memory problems and a doc did a different round of blood tests and found my B12 levels were really low (pernicous anemia)-standard is 200-800, I was at a 182. Most twenty-somethings are in the 700-800 range. So I was given Foltx. He couldn’t explain why. I took the Foltx for a year, then moved to College Station. I had a new doc test me and was told my levels were in the “normal” range and he would NOT refill my prescription. My mistake may have been to just accept this and not see if I was in the “normal” range for my age group.
In 2006, I started having the gallstone attacks and that wasn’t properly identified until last year (my college station GP didn’t believe I had gallstones because I was too young). Well, I had the gallbladder removed in May 2007 and my surgeon told me that that is probably why I was experiencing so many stomach issues and he expected everything to be “normal”. It’s not.
It’s now Jan 2008, and for the past month I’ve been feeling “off”. Hard to explain, but I feel like my brain is fuzzy, I’m having trouble concentrating at work, my back hurts, my stomach issues now have included having wierd acidic smelling stool, finding blood in stool (twice last week). I’ve had 3 fever blisters in the past 2 months on my mouth and I’m just freaking out and want some damn answers about what is going on with me!
So, yesterday, after being overwhelmend with lack of concentration, I googled my symptoms. Guess what pulled up?
Celiac Disease (aka Gluten Intolerance)
Now this pisses me off for a few reasons.
1) I was told about this disease back in 2004, when I had the B12 anemia, the doc mentioned this disease and had a scope of my large intestine. He told me I didn’t have Celiacs….well…guess what?? THE LARGE INTESTINE DOESN’T SHOW CELIACS!! IT’S THE SMALL INTESTINE THAT NEEDED TO BE SCOPED!
2)Celiacs is an autoimmune disease and is genetically predisposed. Other autoimmune diseases in this category are Diabetes, Thyroid and Lupus. Guess what? ALL 3 OF THOSE DISEASES RUN RAMPANT IN MY FAMILY (BOTH MOM & DAD’S).
3)Gallstones are a symptom of celiacs
4)The Celiac Foundation has done studies and shows that it generally takes 11 YEARS before proper diagnosis is ever made. WTF MEDICAL COMMUNITY!?!?
So, I have an 2pm appt today with a new general doctor who I’m hoping will at the very least give me the Celiac’s blood test. I’m hoping he will go above and beyond and recommend me to a gastroenterologist or an allergist.